Welcome to my Spoonie Blog!

Hey guys! My name is Jess and this right here is my spoonie blog!


I’m from Los Angeles!

I was diagnosed with Ehlers-Danlos when I was 14.

And even though I’ve been dealing with my other conditions (such as: Fibromyalgia, Delayed Sleep Phase Syndrome, General Anxiety Disorder, Depression, etc.) I wasn’t diagnosed until several years ago in my adulthood.

This blog is going to be an extension of my spoonie loving twitter @Always_Spooning which you can see on my side bar.

Thanks for checking out my blog!


Is the Word Handicap Offensive?

I posed the question on twitter asking people if they thought the word “handicap” was offensive. It was always my understanding that it was offensive when referring to a person… and yet, I realized how often I heard people using the term to refer to things such as parking spaces, bathroom stalls, seating in a theater and most strangely to me, to people. It made me wonder if perhaps, “handicap” was more politically correct to the larger population than I originally thought (which by the way doesn’t make it “okay”). The discussion that came from this question was quite interesting… so here are some tweets that brought up some valid points. I’d love to hear your opinion in the comments below.

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Skye @Disabilisaur

I don’t know, for me it’s more like how it’s used and who uses it, not the context. So I don’t think it’s ever really appropriate but I’m not always offended by it either.

Susan @Susan28651263

It depends on the conversation and how the word is used. Like most words now can be offensive depending on the context of the conversation

C Money @NotoriousCMoney

People don’t like (the word ‘handicap’) because of the definition; “a circumstance that makes progress or success difficult”. I use it sometimes when talking to family. Most disabled people I’ve encountered, loathe “handicapped”. I use it out of habit. Growing up, that was term used everywhere. Parking,ramps,etc.

(Me) Always Spooning @Always_Spooning

“Handicap” which (to me has) always had the connotation as “limiting”.

Coffee Spoonie @CoffeeSpoonie

I (chose) mostly (offensive). I’ve seen people use it in reference to parking and accessible bathrooms and don’t find it offensive because that’s what they’re called (not the person’s fault). However, I don’t think it’s okay to describe a person as handicapped. I think it’s offensive to call a disability a “handicap” or to use it for anything but parking; “Wheel Chair accessible” is better.

The conversation then kind of moved towards trying to find a word or name for that was more fitting and less offensive.

Beth Johnston @bethrajohnston

I like the idea of (‘wheelchair accessible’ instead of the word ‘handicap’) but not everyone who uses disabled parking is in a wheelchair…& it invalidates invisible illnesses a bit.

Elise @ElisePromised

I don’t like the term (‘differently abled’). It makes me feel odd. By not defining “accessible” it takes everyone into account. Isn’t that what we’re actually after?

Coffee Spoonie @CoffeeSpoonie

I 100% agree (the term ‘handicap’) contributes to society’s narrow idea of what Disability looks like but so does ‘differently abled’.

Adriel @AdrielsLife

I have reffered to myself as handicap, but I am hesitate to call myself disabled. Just realized why. My doctor gave me documentation needed to get handicap parking. But government won’t classify me as disabled. Obviously that doesn’t mean I’m not disabled, but it has affected the way I veiw myself. Anyway just had a personal epiphany. But I will be more cautious about how I use the term handicap from now on.

Chronic Style Disorder @StyleDisorder

it seems to be a US thing. It’s seen as old fashioned at best in the U.K. Everyone just uses disabled instead.

Also, @bethrajohnston states that in Australia the word “disabled” is used.

How Autistic Feels @AutisticFeels

(The term ‘handicap’ is) only acceptable when used as a horse racing term.

Lawyer Morty @FragilePrinxe

I definitely agree with you on when it’s not offensive, “handicap” parking, seating, etc. but don’t use it for people. it can be dehumanizing.

I hope you found this discussion as thought provoking. I think we concluded that the words “disabled” and “accessible” were acceptable replacement terms for American’s use of “handicap.” Please comment below with your response to the post. I’d love to hear from you. Thanks to everyone who participated and to everyone reading.

Is the Diversity Doodle on Google Marginalizing People with Disabilities?

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My my first reaction to this piece was “this is really cute and inclusive of all types of diversity.”

My second reaction, “Why are the visibly disabled in the background of the image?” It’s almost as if the artist was purposely portraying them as “in” the group but still not “a part” of the group. Why must people with disability, forever be on the fringes of society?

My third reaction, was to learn more about this image and see if I could deduce the thought process behind the creation of this art.

The art was created by a 15 year old, 10th grader from Connecticut, who won this year’s Doodle 4 Google competition. She states, “I wanted to draw something that I hoped would show that we can all get along well, and that it’s possible for us to be happy with each other.”

My fourth and final reaction, considering her age… I do not hold anything against her. She was obviously trying to create something from the goodwill of her heart. Also, if I was a person, who had a brother with special needs, or if I didn’t on occasion require a mobility device… perhaps, I too wouldn’t find this image strikingly off. It’s just unfortunate where she placed the visibly disable in her art, and how they seem to be leaning in and reaching towards the group, while the individual using the wheelchair, and the individual using the cane are not being embraced by the others.

I would love to hear your opinions. Just please, be kind. I will delete comments if they seem to be bullying in anyways towards a 15 year old doing her best.



Spoonie Hashtags for Twitter

We all know that a huge part of being able to connect with others on Twitter, is knowing the right hashtags to use. So here is a list of spoonie hashtags people use on Twitter. Please reply with ones you like to use if they aren’t on the list! Thanks.

#ArtfulSpoons – @artfulspoons
#BloggingInBed – @blogginginbed
#SpoonieBloggers – @spooniebloggers
#SpoonieCult – @spooniecult
#SpoonieProblems – @spoonieproblem
#SpoonieSpeak – @SpoonieSpeaks @WhenTaniaTalks
#ZebraStrong (mostly for Ehlers-Danlos)

Feel free to follow me on Twitter @Always_Spooning  ❤